Skyler

We know that we’ll be here in PICU at least one more day. They did an ultrasound on her heart to see how it was recovering, and while things are going good, they still thought her heart was working a bit too hard to take her off the meds and move to another floor. So…

Skyler was able to go off her breathing tube by 3:30 today! She had no problems at all, thank goodness! She was a lot higher risk due to her RSV, but since it never really reared it’s ugly head, it didn’t cause her any issues getting off the ventilator. This was her biggest step toward…

Skyler stayed pretty stable all day yesterday. Her nurse stays in the room with her and watches her like a hawk. It’s very relieving to have someone so attentive to her to make sure all her vitals stay in control so she can heal. They have kept her asleep this whole time, but now and…

I think we can see the light at the end of the tunnel. Skyler’s surgery went off without a hitch. They took her around 7:30 this morning. I knew it would be hard but there are no words to describe the feeling that while the odds were good, it still could’ve been my last time…

I’m a little worried that Sky’s surgery could get postponed again. No one has said anything, but I think that her cough is worsening and actually sounds like she has more chest congestion. None of the nurses or docs have been concerned when listening with the stethescope, so I hope it’s just me being paranoid.…

We just got the word. She is the first surgery scheduled for Monday morning. Let’s just pray she stays strong till then and doesn’t catch any other nasty sickness between now and then!

I’ve got a bit of time so I’m going to go ahead and post what happened leading up to everything that’s been going on with Skyler. Skyler’s had a cold since Wednesday of last week. It didn’t seem very bad, just some moderate green snot, loss of appetite, and mild cough. We weren’t concerned. Over…

Tonight I went to dinner at the Ronald McDonald room. It’s a homey little place that volunteers come and serve dinner to parents of patients here. It’s a nice setup with comfy chairs and TV and kitchen. It actually feels like you are in someone’s home and not at a hospital. I sat in a…

Skyler had a great night last night. She slept for nearly 5 hours without stirring, her stats were almost perfect the whole time, and she didn’t even wake when the nurse came to do her charts. That also meant that we got a little more sleep, except for her monitors beeping and waking us up,…