Skyler

  • The Difference Between Mommy & Daddy

    By Skyler Daddy dresses me in onesies. It doesn’t matter which onesies, if they are nice ones or sleep ones. He typically avoids the Winnie the Pooh onesies, and if he puts socks on my feet, they don’t always match my onesie. Same goes with pants. He even put the pants on my head at…

  • Thank you’s

    I just wanted to take a moment and thank everyone who has been supporting our family through Skyler’s heart adventures, whether it is financial support, prayer support, words-of-encouragement support, etc. I have gotten behind with our busy life and not been able to thank everyone yet! We have been so blessed to have family, friends,…

  • Doctor sees improvement!

    Ronnie took Skyler to her cardiology appointment this morning and the doctor said she is finally seeing some improvement in her heart function! Apparently Skyler was pretty well-behaved, too, because the doctor was able to experience some of her normal happy demeanor. She’s now a whopping 13 pounds and 2 ounces (hey, that’s big for…

  • Motherhood, thus far

    It occurs to me daily, how lucky I am. I was given a gift I never asked for, and yet it was the best gift I ever received. My life has been forever changed, and although the depth of joy is astounding, there is a sharp pain that accompanies it. Skyler’s smiles and laughs bring…

  • One more important post today!

    Little Catherine Cook, the 5-year-old girl that was shot in the head back in February, whose parents we got to know at Children’s Mercy, got to go home! My friend sent me a text that she was on the news tonight, so I went to ABC website and found the story. I am so happy…

  • Playing outside

    Yesterday was so pretty outside that we took Skyler out to play. I took a blanket and some toys so she could lay on the ground, but the sun was so bright, she couldn’t keep her eyes open! I even found a sun hat to put on her. Skyler in that hat has got to…

  • Natural Light

    I love photography. My good friend Rebecca is a professional photographer and I love following along her photo blog. Her work is inspiring to me, and makes me want to pick up a camera. In high school I took photo classes and continued with it my first year in college as part of an art…

  • On a happy note

    I’ve got lots of cute pictures and videos to post, but I’ve got to find time to do it this week. In the meantime, here is one – it is currently the wallpaper on our computer. She is such a goofball!

  • Long road ahead

    Skyler had another appointment with the cardiologist today, and it didn’t go nearly as well as I had hoped. She said her aorta looks good, but her heart function has just not improved at all since surgery. She said it could be a long time before it gets to “normal” but yet she would liked…

  • Shame on me!

    How many days ago did I write about my impatience with Skyler’s development and my worries that she would always be behind? Was it two? Today she did several “new” things, all in a matter of hours. First, she was playing with my cell phone on my lap, which she loves to do. I decided…