heart surgery

  • 28 Days Later

    Four weeks ago, we welcomed Layla into this world. It was painful, scary, wonderful, and she blessed us with her first breaths immediately. She still resides at Children’s Mercy Hospital where we spend our days with her. We’ve had so many ups and downs during her stay here – I wanted to document the experience…

  • Hurry Up and Wait

    Layla is 13 days old and I’m writing this as we sit in her room at the Children’s Mercy PICU. There are what looks like a thousand wires and tubes connecting machines to each other and to her. Her heart and lungs are currently being supported by ECMO (Extracorporeal Membrane Oxygenation), which she’s been relying…