Overall today Skyler’s stats have shown improvement. Her heart rate has been in the 140’s – 150’s most of the time. Yesterday and the day before she was in the 170’s – 180’s. Her respiratory rate has come down also to the 40’s versus the 70’s. All much closer to where they want her to be, so that is great! She’s had some good naps too and a couple good playtimes. She has her security blanket from home here. Today she fell asleep with it over her face, which is what she does at home if the room is too bright. She is smart enough to block the light! It was great to see her do that because that is one of her unique traits, so glimpses of her personality despite being sick are so encouraging!
We still have no idea when surgery will occur. Depending on who we talk to it’s within days, a week, or weeks. Frustrating! But everyone says her lungs are looking and sounding great which is the main concern for surgery, so they are watching closely to make the decision as soon as possible.
We are hanging in there. I went and got some magazines and puzzle books and more stuff from home to make us more comfortable too. Hopefully tonight we can get some good rest as well! We continue to thank everyone for their prayers and thoughts. It’s amazing the love and support that you all are providing!