Skyler had a great night last night. She slept for nearly 5 hours without stirring, her stats were almost perfect the whole time, and she didn’t even wake when the nurse came to do her charts. That also meant that we got a little more sleep, except for her monitors beeping and waking us up, at least we were able to catnap and not worry about Skyler.
This morning was a rough one, though, for her. Here is how it went:
Nurse comes in early a.m. to draw blood. Took a couple tries – Skyler hates it. X-ray team shows up shortly thereafter to do the daily chest x-ray, Skyler hates it. After everyone is done pestering her, Ronnie feeds her and she downs 5 ounces (the most she’s eaten in days). Unfortunately nurse comes back in and says she has to draw more blood, which takes a couple tries, so Skyler is all out of sorts. Ronnie picks her up to comfort her when it’s all over, but she is so upset that she commences puking all over herself and him. Pretty sure the entire 5 ounces came back up. The nurse came in and helped get everything cleaned up, including a sponge bath for Skyler (which again, she hates!) and finally she gets to lay down and rest. After a bit of resting we fed her again and the she fell asleep with her blankie for a couple hours. Finally, peace!
Besides the rough morning, she is still doing good. Every nurse and doc that have seen her since the RSV diagnosis have said she doesn’t even look or act like a baby with RSV. So that is good! They say her lungs still look great. The head PICU doc came in a bit ago to look at her and said she will talk to the surgical team about getting her on the schedule asap. She said tomorrow would be a stretch, but Monday is highly likely. She will let us know as soon as she talks to them. We are in fairly good spirits now besides being tired and impatient. We just want to get over this hump of surgery and on the road to recovery. But we also understand she has to be as healthy as possible to have surgery, so it’s just a catch 22.